HCSRN'S COLLECTIVE EXPERTISE

There are many ways to partner with or involve patients in research. The HCSRN has excelled in the relatively recent shift toward conducting patient-partnered research, with nearly three dozen awards from the Patient-Centered Outcomes Research Institute (PCORI) since PCORI 's creation in 2011. 

 

Given that the HCSRN has amassed numerous insights and practical approaches to patient-partnered research, this page will grow and evolve to serve as a repository for those interested in collaborating with patients.  We invite you to contribute resources, join our Patient Engagement in Research Scientific Interest Group, or simply bookmark this page for future reference. 

 

 

A RANGE OF PATIENT PARTNERSHIPS

Collaborations with patients can take on many different formations in the context of a research study. Each study is different, and may benefit from occasional involvement of a Patient/Family Advisory Council, consultation at specific junctures of a study, or a steady, ongoing partnership with one ore more patient co-investigators.

 

 

PATIENT ENGAGEMENT RESOURCES

  • Patient Engagement Workbook - created by the Patient Engagement in Research Scientific Interest Group

  • Check back soon for more materials, including presentations, tools, and resources that are specifically aimed at research partnerships based in health systems.